Dysautonomia is the general term for nervous system disorders that disrupt the autonomic nervous system (ANS).
There are two main types of dysautonomia: primary and secondary.
Primary dysautonomia can happen on its own without a specific cause and isn’t as common as secondary dysautonomia. Two types of primary dysautonomia are familial dysautonomia, which means it is inherited, and idiopathic dysautonomia, which means it happens for reasons healthcare providers can’t explain or detect. Your odds of having familial dysautonomia are increased if you:
- Have a family member, such as a parent or sibling, with dysautonomia
- Are of Jewish heritage, especially if you are Ashkenazi Jewish heritage
- Are of Eastern European heritage
Secondary dysautonomias are conditions that can cause or contribute to dysautonomia, such as:
- Amyotrophic lateral sclerosis (ALS)
- Autoimmune autonomic ganglionopathy (AAG)
- Amyloidosis
- Botulism
- COVID-19 infection, especially long COVID
- Lewy body dementia
- Lupus
- Parkinson’s Disease
- Multiple Sclerosis (MS)
- Rheumatoid Arthritis
- Type 2 diabetes
The autonomic nervous system manages all the body processes you don’t think about, such as your blood pressure, body temperature, breathing, digestion, heart rate, sweating, and much more. If you have dysautonomia, one or more of these ANS processes aren’t functioning properly.
Dysautonomia can cause several different symptoms due to its effect on the autonomic nervous system, including:
- Nausea and vomiting
- Brain fog, forgetfulness, or trouble focusing
- Balance problems
- Vertigo
- Migraines or frequent headaches
- Mood swings or anxiety
- Fatigue or ongoing tiredness
- Sexual dysfunction
- Vision issues, such as blurred vision or trouble with your eyes adjusting to light changes
- Pinpoint pupils or unusually wide-eyed pupils
- Unusually dry or watery eyes
- Trouble swallowing
- Sound or light sensitivity
- Chest pain or discomfort
- Runny nose
- Shifts in body or skin temperature
- Sweating more or less than usual, or sweating more in certain body parts
- Clammy or pale skin
- Exercise intolerance
- Excessive drooling
There can be several possible complications of dysautonomia because of how it affects vital body processes. Most of the complications revolve around symptoms of dysautonomia, especially when they’re severe or disrupt your usual routine and activities. Serious symptoms and complications typically include:
- Trouble breathing, such as shortness of breath
- Heart rate issues, such as heart palpitations, irregular heartbeat, or a fast or slow heart rate
- Dizziness, lightheadedness, fainting, or passing out (especially when standing up), which can lead to injuries from falls
- Disrupted digestion, such as changes in bowel movements, such as constipation or diarrhea
- Disrupted kidney function, leading to urinary tract infections, a frequent urge to pee, or urinary incontinence
Diagnosing dysautonomia is often a process of elimination, using a combination of methods and tests. It also involves determining how and when symptoms happen and finding the pattern linking them. Experienced healthcare providers may find it challenging to diagnose dysautonomia because it can cause symptoms throughout the body that might not seem connected. Healthcare providers may also link symptoms to the condition causing dysautonomia but not realize dysautonomia is also happening.
Some of the tests that may help diagnose dysautonomia or help rule out other conditions include:
- Physical and neurological exams
- Heart tests, especially an electrocardiogram
- Ultrasound and other tests for symptoms related to urinary incontinence
- Blood tests, especially testing for antibodies that indicate an autoimmune disorder or testing levels of certain neurotransmitters such as catecholamines
- Tilt table test
- Sweat tests, such as the quantitative sudomotor axon reflex test
- Pupil measurement testing, also known as pupillometry
There is no cure for dysautonomia. However, many symptoms are manageable, and the approach for treating dysautonomia depends on several factors, especially the cause.
Some treatment approaches that might help include:
- Staying hydrated
- Making dietary changes
- Taking medications to increase blood pressure
- Taking immune-suppressing medications or other immune system treatments
If you are experiencing any symptoms of dysautonomia, you can consult a neurologist at Jamaica Hospital Medical Center. To schedule an appointment, please call (718) 206-7246.
All content of this newsletter is intended for general information purposes only and is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Please consult a medical professional before adopting any of the suggestions on this page. You must never disregard professional medical advice or delay seeking medical treatment based upon any content of this newsletter. PROMPTLY CONSULT YOUR PHYSICIAN OR CALL 911 IF YOU BELIEVE YOU HAVE A MEDICAL EMERGENCY.

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