National Sickle Cell Awareness Month Archives

Sickle Cell Awareness Month

Posted on September 5, 2024 by Patrick Hercules

September is sickle cell awareness month. Sickle cell disease is a group of inherited red blood cell disorders that affect hemoglobin, the protein that carries oxygen through the body. It is the most common inherited blood disorder in the United States. The disease gets its name from the abnormal crescent or “sickle” shape that some red blood cells develop, causing those red blood cells to block the blood flow through the body creating recurring episodes of pain.

Sickle cell disease is a lifelong disease affecting more than 100,000 people in the United States and 20 million worldwide. In the U.S., most people who have sickle cell disease are of African ancestry or identify themselves as black. About one in 13 Black or African American babies are born with the sickle cell trait and about one in every 365 Black or African American babies are born with sickle cell disease. Many people who come from Hispanic, Southern European, Middle Eastern, or Asian Indian backgrounds also have sickle cell disease.

There are many symptoms of sickle cell disease. Early symptoms can include:

Jaundice- a condition that causes the color of the skin or whites of the eyes to turn yellow
Extreme tiredness
Painful swelling of the hands and feet

Many serious symptoms and complications of sickle disease can include:

Episodes of severe pain
Anemia symptoms- fatigue, shortness of breath, dizziness, and an irregular heartbeat
Fever
Acute chest syndrome
Stroke
Priapism
Avascular necrosis
Pulmonary hypertension
Organ damage
Leg ulcers
Gallstones
Deep vein thrombosis
Pregnancy complications
Vision problems
Frequent infections

There are many ways to manage and treat sickle cell disease including:

Medicines
Blood transfusions
Blood and bone marrow transplant
Gene therapies
Complementary and alternative medicine (CAM)

Your healthcare team will probably include a doctor specializing in blood diseases called a hematologist.

If you need help managing symptoms of sickle cell disease or sickle cell trait, schedule an appointment with a hematologist at Jamaica Hospital Medical Center’s Department of Internal Medicine at (718) 206-7001.

All content of this newsletter is intended for general information purposes only and is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Please consult a medical professional before adopting any of the suggestions on this page. You must never disregard professional medical advice or delay seeking medical treatment based upon any content of this newsletter. PROMPTLY CONSULT YOUR PHYSICIAN OR CALL 911 IF YOU BELIEVE YOU HAVE A MEDICAL EMERGENCY.

Sickle Cell Awareness for Expecting Mothers

Posted on September 12, 2016 by Zakiya Hazel-Jemmott

September is National Sickle Cell Awareness Month. Sickle cell disease (also called SCD) is a condition in which the red blood cells in your body are shaped like a sickle (like the letter C). This can result in interruption of blood flow, and prevent oxygen from reaching tissue and organs. When this occurs, painful events can occur with an associated risk of muscle, bone and organ damage.

A careful history should be taken from all pregnant women seeking to identify risk factors for genetic disorders. A simple blood test either before conception or during pregnancy can determine whether either parent carries a sickle cell trait. During pregnancy, SCD poses problems to both mother and fetus.

With regular prenatal care, most women with SCD can have a healthy pregnancy. However, if you have SCD, you’re more likely than other women to have health complications that can affect your pregnancy. These complications include pain episodes, infection and vision problems. During pregnancy, SCD may become more severe, and pain episodes may happen more often. Pain episodes usually happen in the organs and joints. They can last a few hours to a few days, but some last for weeks.

As a pregnant woman with sickle cell disease certain risk factors may increase:

Miscarriage
Premature birth
Having a baby with low birth weight (less than 5 pounds, 8 ounces)

If you have SCD and you’re pregnant or planning to get pregnant, talk to your health care provider about the medicines you are taking. Your provider may change your medicine to one that is safe for your baby during pregnancy.

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September is Sickle Cell Awareness Month

Posted on September 18, 2015 by Michael Hinck

September has been designated National Sickle Cell Awareness Month to bring attention to this genetic disease that affects an estimated 100,000 Americans.

Sickle cell disease is an inherited form of anemia – a condition in which red blood cells are unable to carry oxygen throughout the body. For most, red blood cells are round and can move easily through blood vessels, but the red blood cells in people with sickle cell disease are crescent, or half-moon shaped. These irregular shaped cells can get stuck in blood vessels, which can slow or block the flow of oxygen to certain parts of the body.

In addition to being irregular in shape, sickle cells are fragile and break apart easily. Normal red blood cells live an average of four months before they die and need to be replaced. Sickle-shaped cells however only live an average of 20 days. The result of this shortage of blood cells is a loss of energy and general sense of fatigue.
Other symptoms of sickle cell disease include:

• Hand-Foot Syndrome – Often the first sign of sickle cell disease. It is caused by a lack of blood flow to the hands and feet

• Episodes of Pain – Referred to as a “crisis”, these episodes of pain occur when blood flow is blocked to the chest, abdomen, and joints. The frequency and duration of the episodes vary from person to person, but in severe cases, they can result in hospitalization.

• Frequent Infections and Fever– Sickle Cell can cause damage to the spleen, an organ that fights infection, making those with sickle cell at greater risk of developing an infection and an accompanying fever.

• Changes in Skin – People with sickle cell disease can develop a yellow tint to their skin or the whites of their eyes. Skin and nail beds can often become pale.

• Delayed growth – By not receiving enough oxygen rich red blood cells, those with sickle cell disease may also not get the necessary nutrients essential for growth.

The risk of inheriting sickle cell disease is a genetic one. For a baby to be born with it, both parents must carry the sickle cell gene. Doctors can diagnose sickle cell disease before a child is born. Couples who are at risk for passing on this disease to their children may want to talk with a genetic counselor about prenatal testing. The sickle cell gene is more common in families that come from Africa, India, Carribbean islands, and Central and South America.

To determine if you have sickle cell disease, your doctor can order a test to check for hemoglobin S, the defective form of hemoglobin that underlies sickle cell anemia. Further tests can confirm the existence of one gene (carrying the sickle cell trait) or two genes (sickle cell anemia). For those who have sickle cell anemia, treatment is aimed at treating the symptoms and avoiding crisis. Regular check-ups to monitor your red blood cell count are important. Medications are available to reduce pain and prevent complications can be prescribed, and blood transfusions, supplemental oxygen and even bone marrow transplants may also be necessary.

Jamaica Hospital serves a culturally rich and diverse population. Many members of our community are from the parts of the world most often affected by sickle cell disease. In recognition of National Sickle Cell Awareness Month, Jamaica Hospital’s encourages anyone living with sickle cell disease to carefully manage their condition. The hospital also recommends all potential parents to be tested for the sickle cell trait.