National Sickle Cell Awareness Month

Posted on September 3, 2026 by Patrick Hercules

September is National Sickle Cell Awareness Month, a month that addresses the challenges patients, their families, and caregivers experience and provides an opportunity to increase public knowledge and understanding of sickle cell disease and traits.

Sickle cell disease is a group of inherited red blood cell disorders that affect hemoglobin, the protein that carries oxygen through the body. It is the most common inherited blood disorder in the United States. The disease gets its name from the abnormal crescent or “sickle” shape that some red blood cells develop. These abnormal red blood cells block blood flow, resulting in recurring episodes of pain.

Sickle cell disease is a lifelong disease affecting more than 100,000 people in the United States and 20 million worldwide. In the U.S., most people who have sickle cell disease are of African ancestry or identify themselves as Black. About one in 13 Black or African American babies are born with the sickle cell trait, and about one in every 365 Black or African American babies are born with sickle cell disease. Many people who come from Hispanic, Southern European, Middle Eastern, or Asian Indian backgrounds also have sickle cell disease.

There are several symptoms of sickle cell disease. Early symptoms can include:

Jaundice- a condition that causes the color of the skin or whites of the eyes to turn yellow

Extreme tiredness

Painful swelling of the hands and feet

Many serious symptoms and complications of sickle disease can include:

Episodes of severe pain

Anemia symptoms, such as fatigue, shortness of breath, dizziness, and an irregular heartbeat

Fever

Acute chest syndrome

Stroke

Priapism

Avascular necrosis

Pulmonary hypertension

Organ damage

Leg ulcers

Gallstones

Deep vein thrombosis

Pregnancy complications

Vision problems

Frequent infections

There are many ways to manage and treat sickle cell disease, including:

Medicines

Blood transfusions

Blood and bone marrow transplant

Gene therapies

Complementary and alternative medicine (CAM)

Your healthcare team will probably include a doctor specializing in blood diseases called a hematologist.

If you need help managing symptoms of sickle cell disease or sickle cell trait, schedule an appointment with a hematologist at Jamaica Hospital Medical Center’s Department of Internal Medicine at (718) 206-7001.

All content of this newsletter is intended for general information purposes only and is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Please consult a medical professional before adopting any of the suggestions on this page. You must never disregard professional medical advice or delay seeking medical treatment based upon any content of this newsletter. PROMPTLY CONSULT YOUR PHYSICIAN OR CALL 911 IF YOU BELIEVE YOU HAVE A MEDICAL EMERGENCY.

Sickle Cell Awareness Month

Posted on September 7, 2022 by Jacob Lobosco

Over 100,000 Americans suffer from sickle cell disease. According to the National Heart, Lung, and Blood Institute, Black and Hispanic-American babies are most often born with the disease. Additionally, one in every 13 Black babies is born with sickle cell trait (HbAS), which generally doesn’t cause symptoms of sickle cell disease, but may lead to health issues in response to physical stresses such as dehydration or strenuous physical exercise.

A person with sickle cell disease has abnormal hemoglobin, causing their red blood cells to become hard and sticky. These cells form into a shape resembling a sickle and have a short life cycle, leading to a constant shortage of red blood cells and symptoms that include pain, infections, strokes, and acute chest syndrome.

There are also several different forms of sickle cell disease. Common types include:

Sickle cell anemia (HbSS), which causes standard sickle cell disease symptoms as well as potential issues such as delayed puberty and vision problems
HbSC, a typically mild form of sickle cell disease
HbS beta thalassemia, in which a child inherits the genes for both sickle cell disease and beta thalassemia, another cause of abnormal hemoglobin

Rare forms of sickle cell disease include:

HbSD, in which a child inherits the sickle cell “S” gene and a “D” gene
HbSE, in which a child inherits the “S” and “E” genes
HbSO, in which a child inherits the “S” and “O” genes

Sickle cell disease can be diagnosed through a blood test shortly after a baby’s birth or through a sample of the amniotic fluid surrounding a baby in the womb. A blood test can also be used to diagnose an adult with sickle cell disease.

People with sickle cell disease can manage their symptoms by staying hydrated, regulating their body temperature, and avoiding spaces with low oxygen levels. Practicing good hand hygiene can also help.

Sickle Cell Awareness for Expecting Mothers

Posted on September 12, 2016 by Zakiya Hazel-Jemmott

September is National Sickle Cell Awareness Month. Sickle cell disease (also called SCD) is a condition in which the red blood cells in your body are shaped like a sickle (like the letter C). This can result in interruption of blood flow, and prevent oxygen from reaching tissue and organs. When this occurs, painful events can occur with an associated risk of muscle, bone and organ damage.

A careful history should be taken from all pregnant women seeking to identify risk factors for genetic disorders. A simple blood test either before conception or during pregnancy can determine whether either parent carries a sickle cell trait. During pregnancy, SCD poses problems to both mother and fetus.

With regular prenatal care, most women with SCD can have a healthy pregnancy. However, if you have SCD, you’re more likely than other women to have health complications that can affect your pregnancy. These complications include pain episodes, infection and vision problems. During pregnancy, SCD may become more severe, and pain episodes may happen more often. Pain episodes usually happen in the organs and joints. They can last a few hours to a few days, but some last for weeks.

As a pregnant woman with sickle cell disease certain risk factors may increase:

Miscarriage
Premature birth
Having a baby with low birth weight (less than 5 pounds, 8 ounces)

If you have SCD and you’re pregnant or planning to get pregnant, talk to your health care provider about the medicines you are taking. Your provider may change your medicine to one that is safe for your baby during pregnancy.

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